PUBLIC AWARENESS - Steve Gleason has always pursued travel and adventure. To raise public
awareness for ALS, The Gleason Initiative Foundation helps provide, coordinate and document
extraordinary lifetime adventures for ALS patients. By documenting these lifetime adventures, The Gleason Initiative Foundation helps ALS patients inspire others and share their story with the world.
- Maxine, pALS
"The device has been a huge help to our family now, but it also gives us peace of mind for the future to be able to turn on eye gaze when she will lose her ability to write. Knowing that we will have a way to communicate with Mom gives our family tremendous peace."
-Natalie, daughter of Lillian (pALS)
"The eye gaze equipment from Steve Gleason has given me back my identity as a musician. About a year ago I started to think about attempting a large project, a new composition for full choir and orchestra. Due to the method I had to use to write music, note by note using eye gaze, the process took three months of almost daily work. But the work was enjoyable and rewarding. What resulted was the piece, "God So Loved The World, This Is Christmas" with a premier performance by the Mosaic Arts Choir and Orchestra in their annual Christmas concert. The piece was picked up for publication by Sound Music Publications and is now available on their website. All of this was not possible without the generosity of Steve Gleason's organization and the eye gaze equipment they provided. ALS does not define me. Thank you Steve! No white flags!"